Making A Food Kit for Hurricane Prep For Dialysis Patients

So, last week I told you about my 5 day food kit, but I am a non dialysis CKD person.  What if you are on dialysis?  Well your food kit will look much different, and if you have Diabetes too, well again different.  Every time I do one of these posts, I am going to stress to you the importance of a few things that will make your life a lot easier.

1-  Save a little bit of money each week, in case you need to evacuate.

2-  Buy a generator if you can.  We don’t own one, but I am not on dialysis,

3-  Sign up with your local power company as someone who needs their power turned on the fastest.  I may do this because my husband uses CPAP to sleep.  He won’t die without it, but none of us will sleep.

4-  Sign up with your county special needs shelter.  I believe all counties in FL have them, and update your info before each hurricane season.

The info I will share now is from the NKF website.  They recommend 3 days of food, I would say 5, as a lot of times the power is out for at least 5 days in some spots.  I start to stock up food and water in April and add a little bit each week.

Probably the most important thing will be the fact that you won’t be able to get dialysis so waste, and water can build up.  So here are the foods they recommend  to help avoid waste build up.  This list is somewhat similar to my list, I changed for my needs.  Remember it needs to last 5 days, and the list is per person.  So if there are 3 people in your house you need to take that into consideration.

Distilled, or bottled water 1-2 gallons.  Do not drink more than 4 oz with meds, and try to use applesauce instead of water, and suck on hard candy to help alleviate thirst.  Dry milk, or evaporated milk, cranberry, grape, or apple juice.  You must dilute the evaporated milk with water, half and half prior to using.

Cold cereal, but avoid bran, granola or cereal with dried fruits and nuts.  This will help keep your phosphorus down.  Fruit or fruit cups packed in water, not heavy syrup.  Remember that all canned foods must be used within 4 hours of opening, if they can not be kept cold.  Low sodium vegetables, no lentils or beans.  Remember a can opener.  Eat your fresh fruit and veggies first, and always remember fruit has liquid in it.  Potatoes and tomatoes are very high in potassium.

Canned meats, like tuna, crab, chicken or salmon low sodium varieties.  Rinse all canned foods prior to consuming, to  help reduce the sodium levels.  Unsalted peanut butter, or almond butter.  Bread, which can be frozen for up to 3 months, so you can stock up.  Mayonnaise, jelly, vanilla wafers, graham crackers, and unsalted crackers.  I can tell you Raspberry Preserves on anything is delicious, even unsalted crackers.  Sugar free candy, and chewing gum.  Chewing gum is another way to help keep your thirst at bay.  I have chronic dry mouth, and I frequently chew gum, of course sugar free is best.

If you don’t use your hurricane meal kit, which I hope you won’t have to, be sure to check expiration dates the next year, or donate when hurricane season is over to your local food pantry.

Don’t forget some spices.  Salt free seasonings are generally very high in Potassium so be very careful if using them, especially when you can’t get dialysis.  Try not to over eat, just eat little amounts to keep hunger at bay.  Vinegar tastes just like salt, and is salt free, but again it is a liquid, but you shouldn’t need much.  I use Red Wine Vinegar on everything.  Lemon Pepper seasoning is also one that you only need a little and it goes a long way.  Some do have sodium so check the label first.  Avoid salt as much as possible.  Try to grow a small garden, so you have some fresh veggies, and don’t need canned.  Even if you can only do pots.  I have leaf lettuce, tomatoes, I think potatoes, and carrots growing.  I also have grape vines, banana tree, and a blueberry bush, but so far they have not given me any fruit.

No soda, energy drinks, or sports drinks.  They are high in phosphorus and a lot of times sodium.  You might want a small pack of sugar, especially if you are diabetic.  Don’t forget plastic cutlery, especially if you have to evacuate and eat on the move.

Most important go over your emergency meal plan with your Dietitian to see if you should add, or remove something.  This is a great starter convo, but what suits one may not suit another.

Be safe, ready, and prepared!  Use the contact form below to message me, if you would like me to help you plan a plan.  This is serious stuff, and it can be very scary when it happens.  The better you plan, the less frightening it is.






Hurricane Prep with CKD

In March of 2017, I was officially diagnosed with stage 3 CKD.  In April of 2017 I did a blog post, on my homeschool blog about food prep for hurricanes, with CKD.  I am sharing that original post below, and will write what I have learned, and edited from the original list.  We did end up having to evacuate that year, so being prepared was very helpful.  For the month of May my Thursday posts, will be concerned with Hurricane Prep, for CKD people, or really any chronic disease.  Today, will focus on stocking up on food.  We start stocking up in April, or May.  Anything we don’t use, that can’t be carried over to the next year, we donate to our local food pantry.  What I edited will be in Bold.  We have been in FL, 14 years, and only had to evacuate once.  However, each year we improve, and get better prepared.  It is definitely a learning curve, compared to Blizzards where I grew up.  This will become second nature, if every year you prepare.  It is May 2, and we already have a tropical entity they are watching.  They do not expect it to develop, but will dump a lot of rain on us.  The original list mentioned, is from Davita.

So this is the items they recommend for a 3 day diet kit for CKD, I will state changes I would make for me due to preferences.

1-  3 packages of dry milk or 4 eight ounce cans of evaporated milk.  Evaporated milk can be high in sodium, calcium and protein, so they do recommend watering it down before using, half and half.  Be sure if you choose evaporated milk that you have a way of opening the can, or it will be useless to you.  I did not include this in our kit.  I suppose I may this time, do one powdered milk, just because of the nutritional benefit it can have.  I will have to think about it.  My kids are not babies, but if they were this would definitely be included.  

2-  1 to 2 gallons of distilled or bottled water.  They noted that if you are on dialysis, and you have no power, you should drink only 2 cups of water per day until dialysis can be restored.  This is a very small amount of water so be prepared for that.  We start storing water in April.  With CKD, you have to be sure you have bottled, purified water.  I know a lot of people are against plastic bottles, and would love to do away with them.  But, in the eyes of someone who suffers with CKD, this is a necessity.  Impurities even in tap water can be detrimental to someone with kidney issues.  Be sure to read the part if you are on fluid restrictions, or if you are on Dialysis.  It is very hot and humid, when these storms come through, and can be very dangerous.  If you are on Dialysis, or have a fluid restriction, it is probably best for you to sign up with your local shelter, for individuals with medical needs.  You must do this early, and each year update your info, so they know how to prepare for you.  

3-  Powdered fruit drink 1 can or single packets.  I personally will not be doing this for me, way too much sugar.  Straight water will work best imo.  I will be adding these this year.  I will probably choose ones that have added electrolytes, and the least sugary one I can find.  I don’t like fake sweeteners, so those won’t work well.  Just water is great.  But, it is easy to lose electrolytes in the heat and humidity, with no power.  That would be for storms we did not have to evacuate for.  Losing power is always the biggest issue for where we live.  

4- 1-2 cans of soda, except for dark colas.  Again, I will just add extra water here, or 100% juice, and Ocean Spray is pretty much the only one I use because it has the lowest amounts of sodium, and no preservatives.  Apple and Grape juice are low in potassium so good choices there too.  No soda, Welch’s, Ocean Spray, or Juicy Juice are all 100% juice, and will work fine in an emergency situation.  V8 splash, or V8 juice are also good options for us.

5-  6 boxes of single servings of cereal.  Don’t use Raisin Bran.  Cereal is actually a very good source of iron, since almost all of them are fortified with iron.  They are usually low in sodium, potassium, and protein making them an even better choice.  Always read the labels to be sure, and keep in mind most are very high in sugar.  I have already started to stock up on Organic dry cereal, not in individual bags though.  That is not cost efficient.  We can always split them up in baggies if we need to. 

6.  1 box of sugar, or sugar substitute.  I don’t know about this one being in my kit.  I just don’t see a use for it.  However, if you are a diabetic, it probably would be a very good idea to have some kind of sugar in your kit, in case your sugar drops.  We used hard candy, easier and neater.

7.  Cans, or fruit bowls, they suggested 12.  These need to be low in potassium, so no raisins, oranges, or bananas.  I think most other fruits are low in potassium, except maybe kiwis, but be sure and read labels before adding them to your emergency food kit. This is self explanatory.  I found Pop tarts, cereal bars, pudding cups, and even chips or crackers work well for a family unit.  You can pick and choose which you would decide to eat.  

8.  8 small cans of unsalted meats.  I have never seen completely unsalted meats, especially in a can.  I have seen low sodium tuna, but the others suggested I have not.  I will be putting peanut butter in my kit, not meats. Peanut Butter is high in protein, however it is also high in iron, and other important nutrients.  I will add low sodium crackers, not bread, to my kit.  If you add the unsalted meats be sure to add mayonnaise, or something to make it with, unless you are going to eat it straight out of the can. We will still stick with peanut butter.  Crackers of whole grain bread works fine.  Both have Phosphorus, so it doesn’t matter which I pick.

9.  Like I said above, a loaf of bread, small jar of jelly, and small jar of honey.  I will be adding all these to my kit, except the bread.  Will substitute crackers for bread.  Ritz makes a low sodium cracker, and it is the only brand that I have found that does, at least where I live.  Not much to change here.

10.  A box of Graham Crackers or Vanilla Wafers.  I will add both of these to my kit, as everyone likes these. I have not checked the sodium levels on either yet.  If these are high in sodium, cereal bars will be used.  They have good amounts of iron as well as other nutrients, and everyone at my house likes them.  I think they probably have preservatives, but I guess in an emergency I can’t be too worried about that.  Graham Crackers worked well for us.  Don’t choose Chocolate, unless you don’t plan on eating them.  Chocolate is high in Phosphorus.  You could add cookies here, Fig Newtons are a good option.  The Walmart Great Value brand are higher in Iron, than other varieties.  Again, watch for Potassium, and Phosphorus with Fig Newtons.  I like the strawberry variety.

11.  4 to 6 bags of hard candy. This one is probably the easiest, lol.  Of course these will be high in sugar, unless you buy sugar free.  Peppermint, Cinnamon, and Lifesavers are what we use.

12.  1 package of marshmallows.  Nah, no thanks.  I will probably do bags of pretzels or something.  I hate marshmallows.  No Marshmallows, lol, but a can of nuts, and pretzels worked great.  Again, the nuts could be eaten in small amounts with CKD, especially if you don’t pack any meats.  Try to avoid potato chips, which are high in Potassium.

13-  I am adding coffee, tea, and non dairy vanilla creamer.  

That is the list.  Of course always remember a can opener, and utensils.  I mean you could eat like a caveman.   That is it for food items.  Next week’s post will focus on other issues, related to preparing for a Tropical system with CKD, or just preparing in general.  

Do you live where there are tropical systems?  Do you have a chronic disease?  If you would like assistance in learning how to be better prepared, use the contact form below to message me.  You can check out my May calendar of availability, and read about my available packages, here.  


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